Emotional Support
Counseling and peer support for families facing medical challenges.
Empowering Families Affected by Rare Neurological Conditions
Providing compassionate support, advocacy, and access to inclusive resources for children with Sturge-Weber syndrome and other rare disorders.
Our Unique Services
Explore the vital services we offer to support families in need.
Financial Assistance
Resources to help alleviate the burden of medical costs.
Advocacy Programs
Lobbying for better policies and resources for children with rare disorders.
Educational Workshops
Informative sessions on navigating neurological disorders and available resources.
Empowering Families Through Compassionate Support
The Riley Blair Foundation Inc. is a nonprofit dedicated to supporting children with Sturge-Weber syndrome and other rare neurological disorders, along with their families. Inspired by personal experience, we provide emotional, financial, and resource-based support to help families navigate complex medical journeys. Our programs include advocacy, education, community outreach, and plans for accessible housing designed for children with disabilities. We exist to fill the gap in care and connection, ensuring no family faces rare alone. Our mission is to empower families affected by rare neurological conditions through compassionate support, advocacy, and access to inclusive resources—so every child has the opportunity to live with hope, dignity, and strength.
Why Choose The Riley Blair Foundation?
Empowering families through personalized support and advocacy.
Personalized Support
We offer tailored assistance to families navigating unique challenges.
Experienced Advocacy
Our team champions the rights of children with rare disorders.
Inclusive Resources
Access educational materials and services designed for your child's needs.
Community Connection
Join a supportive network of families sharing similar journeys.
Testimonials
Read what our families have to say about their experience with The Riley Blair Foundation.
Emma
The Riley Blair Foundation has been a blessing for our family during a challenging time.
Jack
The support and resources provided by The Riley Blair Foundation have been invaluable.
Olivia
We are forever grateful for the compassion and assistance we received from The Riley Blair Foundation.
Get in Touch with Us
Reach out for support or inquiries about our foundation's resources and programs.
Frequently Asked Questions
Find answers to common questions about our foundation and how we can help you.
What is Sturge-Weber syndrome?
Sturge-Weber syndrome is a rare neurological condition characterized by facial birthmarks, neurological abnormalities, and possible developmental delays.
How does the foundation support families?
We provide emotional, financial, and resource-based support to families navigating medical journeys, alongside advocacy and community outreach.
Are there programs specifically for children with disabilities?
Yes, we have programs focused on advocacy, education, and plans for accessible housing for children with disabilities.
How can I get involved with The Riley Blair Foundation?
You can volunteer, donate, or participate in our outreach efforts. Contact us for more information.
What are the foundation’s working hours?
Our working hours are Monday, Wednesday, and Friday from 10:00 am to 2:00 pm.
How can I reach out to the foundation?
You can call us at 813-444-8495 or email therileyblairfoundationinc@gmail.com for inquiries.